2 posts so close together ....therapy!
Marc and I caught up on an interview John Bishop did with Paddy McGuinness a while back....as well as talking about his life growing up in Bolton ( obvs I could relate to that ) he spoke about life with his 3 autistic children. One thing he said that really made the penny drop, left me with a light bulb moment , was craving the normal....seeing friend s doing normal things, taking their kids out for normal fun days out with ease and it being normal and fun!
Social media is a nightmare for this as you see people getting up to alsorts of awesome things at the weekends and during holidays and some days I just think....If only we could do that!
You see I've realised why I get so tired easily....every time we go out somewhere or especially to an event. E it work related, or socially I'm on edge, constantly wondering , how will the kids cope in this situation, what could be the triggers and how long can we stay before it gets too much .
This weekend has been exceptionally busy for Marc and I and a s aresult the kids, so today we had a "lazy" morning..I longed to go out and do something especially with Elijah as knew Dan needed his cave but not being able to drive or really walk far we stayed home and sorted toys and watched Postman Pat.
It has taken me many years to recognise that Dan and Marc need these lazy spaces, a chances to download , go into themselves and rest...I feel terrible that it's taken so long and I am still finding it hard but the result in being able to spend a few hours at a dear friends leaving party makes it worth while.
Whatever Sunday holds for you enjoy every moment ,
And appreciate "the normal"
No comments:
Post a Comment